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Caregiver

Welcome to my page about caregiving to those individuals who have found themselves on an journey expected or perhaps unexpected. Preparing for this role is nearly impossible, often unpredicted and can be more than we bargained for or could possibly imagine. It can also be unrelenting. The journey varies for each of us and, as journeys go, each of us will react differently and have a diverse and contrasting set of needs to be met.

I jokingly say that I carry my own briefcase through life, which contain life tools learned and saved along the way. They are taken out and used as needed to assist me in answering a need, a situation or help me cope with a dilemma. You have your briefcase too. These tools are sometimes taught and given to us with the help of others, but primarily we ourselves put those life-learned tools safely in our briefcase to be taken out as emotionally needed. Often we aren’t taught what those emotional tools are, how they can be found, or even how to use them. But they are invaluable to us and help maintain inner happiness and a brighter outlook during a dismally demanding time. These tools can even liberate us while experiencing the day-to-day grind of caregiving to a family member or friend. So whether your loved one is waiting for a heart transplant or has already received “the gift of life,” your role of support and caregiving is an ongoing process. You need to take care of yourself along the way. You ARE important!!! You ARE valuable!!!

I am not a counselor, psychologist or psychiatrist but simply an ordinary woman who has lead an extraordinary life filled with many personal challenges. My life’s tools have been discovered along the way, collected through the years and used often with a focused determination to keep a sunny outlook. I continue to fill my briefcase to this very day with life lessons and hope that, in spite of my circumstances, I will continue to champion myself as I care for another. Won’t you join me?

In various key places in my home a have placed certain phrases or thoughts that remind or inspire me. One of them is “Carpe Diem” which means: Seize The Day…. CHOOSE to make the most of it! I have many others, but my very favorite is “The Best Is Yet To Come.” Perhaps your light is under a barrel and you don’t feel that way today as you read this. Below are some tips and information I’ve gathered that may help lighten the load of caregivers. Remember, although our journey varies and the road may curve, we do share a common highway in life. Here is a road map of ideas and information that you can follow. I especially believe in “A Caregiver’s Bill of Rights” located at the end of this page. As you read on, I sincerely hope that you’ll find a tool that you can keep in your own emotional briefcase. And once found, that tool will successfully be used by you until it becomes second nature. Then you’ll begin to see the light at the end of the tunnel. It’s there you know! Here’s to a good journey and let me hear from you!

 

CAREGIVER RULES

1.


TAKE CARE OF YOURSELF FIRST

If you want to give good care, you have to take care of yourself first.

Caregivers tend to deny their own needs. This strategy may work fine for short-term caregiving. However, for long-term caregiving, it is sure to lead to problems.

Three things happen when caregivers don't take good care of themselves:

• They become ill.
• They become depressed.
• They “burn out” and stop providing care altogether.

These things are bad for both the caregiver and the person receiving the care.

On the other hand, when caregivers take time to care for themselves, 3 good things happen:

• They avoid health problems.
• They feel better about themselves.
• They have more energy and enthusiasm for helping others and can continue giving care.

When you take on the task of caregiving, time becomes your most important resource. Caregiving requires a large time commitment, perhaps all of the extra time you have for yourself. If that happens, problems can develop.

The best way to prevent the depression, frustration, and resentment that cause caregiver burnout is to hold back some time out of every day for yourself. If you wait until all of your chores and caregiving tasks are done before doing things for yourself, you will wait a very long time. Instead, decide on the minimum amount of time you need each day to meet your basic personal needs. Carve that time out of your schedule. Then figure out how the chores will get done.

Here are some important things that you need to find time to do ---- just for yourself.

A. Get regular exercise, even just a few minutes several times a day. Exercise can be a good energizer for both physical and emotional health.
B. Maintain a healthy diet. When you are busy giving care, it may seem easier to eat fast food than to prepare healthy, low-fat meals. Additionally you will have more energy to carry you through the day.
C. Make time for an activity you enjoy – reading, listening to music, painting, fishing, horseback riding, crafts, or playing an instrument – even if you can only do it for a short time each day. If you like to participate in church activities or take classes, ask a friend or family member to stay with your loved one a hour or two once or twice a week so you can do those things.
D. Recognize stress and take steps to manage it. Your need for relaxation increases during period of caregiving.
F. Recognize and deal with signs of depression. Depression is common in caregivers. Maintaining a positive self-image is the most important thing you can do for yourself. Use self-care and ask for extra support when the earliest signs of depression appear. If that doesn't work, seek professional help. Also be on the lookout for depression in the person you are caring for.
G. Deal with important issues in your life. Being a caregiver adds another dimension to your life, but does not mean you have to put the rest of your life on hold.
2. DON'T HELP TOO MUCH

The biggest mistake most caregivers make is providing too much care. Even if they don't admit it, people like to help themselves. Every time you do something for a person that the person could have done alone, there is a double loss. First, your effort may have been wasted. Second, the person has missed an opportunity to help him – herself.

As a caregiver, your highest goal is to give the person you are caring for the power and the permission to be in control of his or her own life (as much as possible). Every act your love one makes to maintain independence is a victory for you as a caregiver.

Here are some things you can do to empower the person you are caring for to do things independently:

• Expect more. People respond to expectations. If you expect the person to get dressed, care for houseplants or prepare simple meals, the person often will.
• Limit your availability to help. If you are not always there to help, the person will be forced to do more on his or her own.
• Simplify. If you are caring for someone who has mild dementia, divide complex tasks into simpler parts for him or her first.
• Make it easy. One of the most productive things a caregiver can do is to make modifications to the person's home and provide the tools that will allow the person to do things without help.
• Allow for mistakes and less-than-perfect results. The hardest thing about letting someone do something alone is knowing that you could do it better or faster. Mistakes are okay.
• Reward both effort and results. Help the person feel good about doing things independently.
• Let the person make as many decisions as possible, such as what to wear, what to eat, or when to go to bed. Help the person maintain a much control as possible.
• Give the person responsibility to care for something. Studies show that when a person is asked to care for a pet or plants etc. they live longer and become more independent.
• Match the task with the abilities.
•

Take acceptable risks. A few broken dishes or a few bruises are a small price to pay for letting someone explore what he or she can do. You can't eliminate all the risks without eliminating all opportunities.

3. DON'T DO IT ALONE

Some caregivers live under the impression that they are the only available source of help. However there are often other sources of assistance available to make your caregiving easier. If you want to be a good caregiver, know where to find help when you need it.

• Immediate family and friends. Perhaps you have adult children or expanded family friends that are understanding, helpful and more than willing to do their part to assist you and thereby help the family person under your care. By helping you, they contribute to maintaining a happier environment in the relative's home. If this is unavailable, perhaps individuals from your church will be glad to assist in some fashion.
• Respite care. This may be one of the most important services for caregivers. Respite services provide someone who will stay with the person while you get out of the house for a few hours.
• Hospice programs provide social, personal, and medical services for terminally ill patients who wish to spend time in their home or in a less formal environment than that of a hospital or nursing home.
•

Support groups give you an opportunity to discuss problems or concerns about caregiving with other caregivers.

CAREGIVER NEEDS FOR RESPITE

If you can answer “yes” to one or more of the following questions, it's time to get more help.

• Do I feel overworked and exhausted?
• Do I feel dissatisfied with myself?
• Do I feel isolated?
• Do I feel depressed, resentful, angry, or worried?
• Do I lack time for exercise and rest?
• Do I lack time for fun with people outside of my family?

TAKE PRIDE

Now that you know these tips for caregiving, you can see that there isn't anything magical or mysterious about being a good caregiver.

• Care for your own needs first – both your physical and mental health depend on it. Give yourself as much special attention as you give the person you are caring for. You are worth it!
• Help the person you care for to be independent – this is a gift to both of you.
• Recognize when you need help, and know where you can get it. A helpful hand at the right time makes all the difference.
• Take pride in being a caregiver. It is not easy, and those who do it are special people!

A CAREGIVER'S BILL OF RIGHTS

I have the right to take care of myself. This is not an act of selfishness. It will allow me to take better care of my relative.

I have the right to seek help from others even though my relative may object. I recognize the limits of my own endurance and strength.

I have the right to maintain facets of my own life that do not include the person I care for, just as I would if he or she were healthy. I know that I do everything that I reasonably can for this person, and I have the right to do some things just for myself.

I have the right to get angry, depressed, and express other difficult feelings occasionally.

I have the right to reject any person's attempt (either conscious or unconscious) to manipulate me through guilt, anger, or depression.

I have the right to receive consideration, affection, forgiveness, and acceptance from my loved one as long as I offer these qualities in return.

I have the right to take pride in what I am accomplishing and to applaud my own courage in the sometimes difficult task of caregiving.

I have the right to protect my individuality and make a life for myself that will sustain me when my relative no longer needs my full-time help.

I have the right to expect and demand that as new strides are made in finding resources to aid physically and mentally impaired persons in our country, similar strides will be made toward aiding and supporting caregivers.

Why don't you make a copy of your Caregiver's Bill of Rights and put it where you can read it everyday? Caregivers are such very special people and YOU ARE ONE OF THEM!!! Should you want to chat, you may reach me at: jkelley2002@comcast.net

My thanks to Aetna Healthwise for this information.

Now make it a BETTER DAY…..The Best IS Yet To Come!!!





TripleHeart, Inc.
E.G. “Kel” Kelley and Joanne Kelley
2991 Concord Way • Douglasville, Georgia 30135-1769
Phone: 770-920-2324 • Fax: 770-920-0887
E-mail Us at: kelkelley@tripleheart.org or jkelley2002@comcast.net

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