Caregiver
Welcome to my page about caregiving to those individuals
who have found themselves on an journey expected
or perhaps unexpected. Preparing for this role
is nearly impossible, often unpredicted and can
be more than we bargained for or could possibly
imagine. It can also be unrelenting. The journey
varies for each of us and, as journeys go, each
of us will react differently and have a diverse
and contrasting set of needs to be met.
I jokingly say that I carry my own briefcase
through life, which contain life tools learned
and saved along the way. They are taken out and
used as needed to assist me in answering a need,
a situation or help me cope with a dilemma. You
have your briefcase too. These tools are sometimes
taught and given to us with the help of others,
but primarily we ourselves put those life-learned
tools safely in our briefcase to be taken out
as emotionally needed. Often we aren’t
taught what those emotional tools are, how they
can be found, or even how to use them. But they
are invaluable to us and help maintain inner
happiness and a brighter outlook during a dismally
demanding time. These tools can even liberate
us while experiencing the day-to-day grind of
caregiving to a family member or friend. So whether
your loved one is waiting for a heart transplant
or has already received “the gift of life,” your
role of support and caregiving is an ongoing
process. You need to take care of yourself along
the way. You ARE important!!! You ARE valuable!!!
I am not a counselor, psychologist or psychiatrist
but simply an ordinary woman who has lead an
extraordinary life filled with many personal
challenges. My life’s tools have been discovered
along the way, collected through the years and
used often with a focused determination to keep
a sunny outlook. I continue to fill my briefcase
to this very day with life lessons and hope that,
in spite of my circumstances, I will continue
to champion myself as I care for another. Won’t
you join me?
In various key places in my home a have placed
certain phrases or thoughts that remind or inspire
me. One of them is “Carpe Diem” which
means: Seize The Day…. CHOOSE to make
the most of it! I have many others, but my very
favorite is “The Best Is Yet To Come.” Perhaps
your light is under a barrel and you don’t
feel that way today as you read this. Below are
some tips and information I’ve gathered
that may help lighten the load of caregivers.
Remember, although our journey varies and the
road may curve, we do share a common highway
in life. Here is a road map of ideas and information
that you can follow. I especially believe in “A
Caregiver’s Bill of Rights” located
at the end of this page. As you read on, I sincerely
hope that you’ll find a tool that you can
keep in your own emotional briefcase. And once
found, that tool will successfully be used by
you until it becomes second nature. Then you’ll
begin to see the light at the end of the tunnel.
It’s there you know! Here’s to a
good journey and let me hear from you!
|
CAREGIVER RULES |
1. |
TAKE CARE OF YOURSELF FIRST
If you want to give good care, you have to take
care of yourself first.
Caregivers tend to deny their own needs. This
strategy may work fine for short-term caregiving.
However, for long-term caregiving, it is sure to
lead to problems.
Three things happen when caregivers don't take
good care of themselves:
| |
They become ill. |
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They become depressed. |
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They burn out and stop providing care altogether. |
These things are bad for both the caregiver and
the person receiving the care.
On the other hand, when caregivers take time to
care for themselves, 3 good things happen:
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They avoid health problems. |
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They feel better about themselves. |
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They have more energy and enthusiasm for
helping others and can continue giving care. |
When you take on the task of caregiving, time
becomes your most important resource. Caregiving
requires a large time commitment, perhaps all of
the extra time you have for yourself. If that happens,
problems can develop.
The best way to prevent the depression, frustration,
and resentment that cause caregiver burnout is
to hold back some time out of every day for yourself.
If you wait until all of your chores and caregiving
tasks are done before doing things for yourself,
you will wait a very long time. Instead, decide
on the minimum amount of time you need each day
to meet your basic personal needs. Carve that time
out of your schedule. Then figure out how the chores
will get done.
Here are some important things that you need to
find time to do ---- just for yourself.
| A. |
Get regular exercise, even just a few minutes
several times a day. Exercise can be a good
energizer for both physical and emotional health. |
| B. |
Maintain a healthy diet. When you are busy
giving care, it may seem easier to eat fast
food than to prepare healthy, low-fat meals.
Additionally you will have more energy to carry
you through the day. |
| C. |
Make time for an activity you enjoy reading,
listening to music, painting, fishing, horseback
riding, crafts, or playing an instrument even
if you can only do it for a short time each
day. If you like to participate in church activities
or take classes, ask a friend or family member
to stay with your loved one a hour or two once
or twice a week so you can do those things. |
| D. |
Recognize stress and take steps to manage
it. Your need for relaxation increases during
period of caregiving. |
| F. |
Recognize and deal with signs of depression.
Depression is common in caregivers. Maintaining
a positive self-image is the most important
thing you can do for yourself. Use self-care
and ask for extra support when the earliest
signs of depression appear. If that doesn't
work, seek professional help. Also be on the
lookout for depression in the person you are
caring for. |
| G. |
Deal with important issues in your life.
Being a caregiver adds another dimension to
your life, but does not mean you have to put
the rest of your life on hold. |
|
| 2. |
DON'T HELP TOO MUCH
The biggest mistake most caregivers make is providing
too much care. Even if they don't admit it, people
like to help themselves. Every time you do something
for a person that the person could have done alone,
there is a double loss. First, your effort may
have been wasted. Second, the person has missed
an opportunity to help him herself.
As a caregiver, your highest goal is to give the
person you are caring for the power and the permission
to be in control of his or her own life (as much
as possible). Every act your love one makes to
maintain independence is a victory for you as a
caregiver.
Here are some things you can do to empower the
person you are caring for to do things independently:
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Expect more. People respond to expectations.
If you expect the person to get dressed, care
for houseplants or prepare simple meals, the
person often will. |
| |
Limit your availability to help. If you are
not always there to help, the person will be
forced to do more on his or her own. |
| |
Simplify. If you are caring for someone who
has mild dementia, divide complex tasks into
simpler parts for him or her first. |
| |
Make it easy. One of the most productive
things a caregiver can do is to make modifications
to the person's home and provide the tools
that will allow the person to do things without
help. |
| |
Allow for mistakes and less-than-perfect
results. The hardest thing about letting someone
do something alone is knowing that you could
do it better or faster. Mistakes are okay. |
| |
Reward both effort and results. Help the
person feel good about doing things independently. |
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Let the person make as many decisions as
possible, such as what to wear, what to eat,
or when to go to bed. Help the person maintain
a much control as possible. |
| |
Give the person responsibility to care for
something. Studies show that when a person
is asked to care for a pet or plants etc. they
live longer and become more independent. |
| |
Match the task with the abilities. |
| |
Take acceptable risks. A few broken dishes
or a few bruises are a small price to pay
for letting someone explore what he or she
can do. You can't eliminate all the risks
without eliminating all opportunities. |
|
| 3. |
DON'T DO IT ALONE
Some caregivers live under the impression that
they are the only available source of help. However
there are often other sources of assistance available
to make your caregiving easier. If you want to
be a good caregiver, know where to find help when
you need it.
| |
Immediate family and friends. Perhaps
you have adult children or expanded family
friends that are understanding, helpful and
more than willing to do their part to assist
you and thereby help the family person under
your care. By helping you, they contribute
to maintaining a happier environment in the
relative's home. If this is unavailable, perhaps
individuals from your church will be glad to
assist in some fashion. |
| |
Respite care. This may
be one of the most important services for caregivers.
Respite services provide someone who will stay
with the person while you get out of the house
for a few hours. |
| |
Hospice programs provide
social, personal, and medical services for
terminally ill patients who wish to spend time
in their home or in a less formal environment
than that of a hospital or nursing home. |
| |
Support groups give
you an opportunity to discuss problems or
concerns about caregiving with other caregivers. |
|
CAREGIVER NEEDS FOR RESPITE
If you can answer yes to one or more of the following
questions, it's time to get more help.
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Do I feel overworked and exhausted? |
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Do I feel dissatisfied with myself? |
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Do I feel isolated? |
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Do I feel depressed, resentful, angry, or worried? |
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Do I lack time for exercise and rest? |
| |
Do I lack time for fun with people outside of my
family? |
TAKE PRIDE
Now that you know these tips for caregiving, you can
see that there isn't anything magical or mysterious about
being a good caregiver.
| |
Care for your own needs first both your physical
and mental health depend on it. Give yourself as
much special attention as you give the person you
are caring for. You are worth it! |
| |
Help the person you care for to be independent this
is a gift to both of you. |
| |
Recognize when you need help, and know where you
can get it. A helpful hand at the right time makes
all the difference. |
| |
Take pride in being a caregiver. It is not easy,
and those who do it are special people! |
A CAREGIVER'S BILL OF RIGHTS
I have the right to take care of myself.
This is not an act of selfishness. It will allow me to
take better care of my relative.
I have the right to seek help from
others even though my relative may object. I recognize
the limits of my own endurance and strength.
I have the right to maintain facets
of my own life that do not include the person I care
for, just as I would if he or she were healthy. I know
that I do everything that I reasonably can for this person,
and I have the right to do some things just for myself.
I have the right to get angry, depressed,
and express other difficult feelings occasionally.
I have the right to reject any person's
attempt (either conscious or unconscious) to manipulate
me through guilt, anger, or depression.
I have the right to receive consideration,
affection, forgiveness, and acceptance from my loved
one as long as I offer these qualities in return.
I have the right to take pride in
what I am accomplishing and to applaud my own courage
in the sometimes difficult task of caregiving.
I have the right to protect my individuality
and make a life for myself that will sustain me when
my relative no longer needs my full-time help.
I have the right to expect and demand
that as new strides are made in finding resources to
aid physically and mentally impaired persons in our country,
similar strides will be made toward aiding and supporting
caregivers.
Why don't you make a copy of your Caregiver's Bill of
Rights and put it where you can read it everyday? Caregivers
are such very special people and YOU ARE ONE OF THEM!!!
Should you want to chat, you may reach me at: jkelley2002@comcast.net
My thanks to Aetna Healthwise for this information.
Now make it a BETTER DAY
..The Best IS Yet To Come!!! |